Fraser Syndrome & Me
Film Description: “Fraser Syndrome & Me” is the movie filmmaker Kyle Anne Grendys needed growing up. As the 75th person to be born with Fraser Syndrome she needed to know that she wasn’t as alone as she felt. Her family needed to know that there were others out there going through the same journey as them. That yes, it is going to be a long and sometimes difficult road, but there is hope. Through lots of traveling Kyle Anne and her family meet their community and find out they feel more like family. She wasn’t nearly as alone as she thought.
Director Biography: My name is Kyle Anne Grendys. I am many things, a little sister, a world traveler, dog mom, musical fanatic, a recent graduate from the University of Wisconsin – Milwaukee’s film program, oh … and I have a disability. I was born with an incredibly rare genetic disorder called Fraser Syndrome. The day I was born doctors told my parents I wouldn’t survive the night. 27 years later I am still proving them wrong. I like to say that I see the world through a view you can’t get from two eyes. I have seen the very worst the world has to offer but without seeing the bad you would never recognize the good. I dedicate my life to making films about everything good.